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Caregivers

Managing Your Elderly Parents Finances
Source: WAMU - Dianne Rehem Show
Content Type: Website with links to recorded program, transcript and resources
Millions of elderly Americans suffer from dementia, Alzheimer's disease and other disabilities that make them unable to make decisions about their finances. About a quarter of all people over the age of 65 rely on relatives, often their children, for help managing their money and assets. But the task of caring for elderly parents and managing their bills and property can be overwhelming and time consuming. It can also be filled with ethical and legal pitfalls and a source of family conflict. Join us for a discussion about the best ways to manage an elderly relative's money.

So Far Away: 20 Questions for Long Distance Caregiving
Source: NIH
Content Type: PDF
A consumer guide to long distance caregiving.

End of Life: Helping with Comfort Care
Source: NIH
Content Type: website or PDF or available to order printed copies
Caregiver guide: End of Life: Helping With Comfort and Care hopes to make the unfamiliar territory of death slightly more comfortable for everyone involved. This publication is based on research, such as that supported by the National Institute on Aging, part of the National Institutes of Health. This research base is augmented with suggestions from practitioners with expertise in helping individuals and families through this difficult time. Throughout the booklet, the terms comfort care, supportive care, and palliative care are used to describe individualized care that can provide a dying person the best quality of life until the end.

Preventing Caregiver Burnout
Source: Helpguide.org
Content Type: Webpage
Helpguide.org offers tips and support for family caregivers. It includes how to avoid a burnout and different types of support groups are also available to family caregivers.

Late-In-Life Marriages Worry Heirs
Source: MSN Money
Content Type: Webpage
More and more adults are getting remarried at a later age. It can happen because of divorce or the death of a spouse. Sometimes, the children of that older adult become worried because they may not particularly trust the new spouse. Pre-nuptial agreements are looked at in this article.

Caring for the Elderly
Source: The New York Times
Content Type: Newspaper webpage
Provides online resources that are of some use to older adults, their adult children, and other caregivers.

Aging Without Children
Source: The New York Times (The New Old Age: Caring and Coping blog
Content Type: Blog
This article talks about aging men and women who have not had children for a variety of reasons. These aging adults are somewhat worried about their futures because children are the ones who should be there if the parent gets sick. However, those without children must rely on friends and other relatives. This article gives their accounts.

NAC
Source: National Alliance for Caregiving
Content Type: Webpage
Provides information about people who serve as caregiver, whether it is a professional or a family member.

Effect Of Informal Care on Work, Wages, and Wealth
Source: Center for Retirement Research at Boston College
Content Type: Research study report as a pdf
Cross-sectional evidence in the United States finds that informal caregivers have less attachment to the labor force, measured both by the number of hours worked and labor force participation. The causal mechanism is unclear: do children who work less become informal caregivers, or are children who become caregivers working less? Using longitudinal data from the Health and Retirement Study (HRS), this project identifies the relationship between informal care and labor force participation in the United States, both on the intensive and extensive margins, and whether there are wage penalties from informal care.

HIPPA and Caregivers - access to health care information
Source: AARP
Content Type: Online article
What can a healthcare provider discuss with family or other caregivers without permission from a patient who's not incapacitated? Keeping close tabs on the health of the person in your care while also respecting his privacy can be difficult. Congress stepped into this balancing act by passing the Health Insurance Portability and Accountability Act (HIPAA). HIPAA sets guidelines for doctors and other medical providers about what kinds of information about their patients they can discuss or divulge, under what circumstances, and to whom.

Community Services for Caregivers
Source: AARP
Content Type: Online article
For older adults who need support to stay independent in their homes, there are a growing number of private and public organizations that offer home and community-based services. Many of these services can help solve long-term care issues and ease the strain on the caregiver. Ranging from bi-weekly help with household chores to round-the-clock in-home care, these services are provided by nurses, trained aides and volunteers. They may take some seeking out, but these services can be well worth the search. Here is some information to help you get started.

How to Assess Your Loved One's Situation
Source: AARP
Content Type: Online article
As parents grow older, they face challenges that their adult children may not know how to address. The children may support their parents' desire to continue living independently, but have concerns about their safety and well-being. One way to help resolve these conflicting emotions, and determine if the parents need assistance, is through an assessment.

8 rules for new caregivers
Source: AARP
Content Type: Online article
Eight basic steps for new family caregivers

Family Support Center on Disabilities: Knowledge & Involvement Network (call us KIN for short!)
Source: Family Support Center on Disabilities
Content Type: Web site
The Family Support Center on Disabilities: Knowledge & Involvement Network (call us KIN for short!) offers you a centralized resource on the full range of options available to individuals with disabilities and their families.

HIPAA: Questions and Answers for Family Caregivers
Source:Next Step in Care
Content Type: PDF
This publication, sponsored by the United Hospital Fund, aims to educate Family Caregivers on access to medical information under HIPAA.